Windy City Media Group Frontpage News
Celebrating 30 Years of Gay Lesbian Bisexual and Trans News
home search facebook twitter join
Gay News Sponsor Windy City Times 2020-04-01
DOWNLOAD ISSUE
About WCMG Publications News  Entertainment Features Donate Bars & Clubs Calendar Advertisers OUT! Guide    Marriage

Sponsor
Sponsor
Sponsor

  WINDY CITY TIMES

US: Doctors Need Intersex Care Standards
From a press release
2017-10-26

facebook twitter google +1 reddit email


( New York, October 26, 2017 ) — Medical professional associations should enact standards of care for intersex children that rule out medically unnecessary surgery before patients are old enough to consent, Human Rights Watch and interACT said in a report released today. After decades of controversy in the medical community over the procedures, the lack of centralized care standards allows doctors to continue operating on children's gonads, internal sex organs, and genitals when they are too young to participate in the decision, even though such surgery is dangerous and could be safely deferred.

The 41-page report, "A Changing Paradigm: US Medical Provider Discomfort with Intersex Care Practices," examines the controversy over the operations inside the medical community and the pressure on parents to opt for surgery.

Once called "hermaphrodites" — a term now considered pejorative and outdated, intersex people are not rare, but their needs are widely misunderstood. Based on a medical theory popularized in the 1960s, doctors perform surgery on intersex children — often in infancy — with the stated aim of making it easier for them to grow up "normal." The results are often catastrophic, the supposed benefits are largely unproven, and there are rarely urgent health considerations requiring immediate, irreversible intervention.

"The intersex community today is saying the same thing we were saying two decades ago — we want doctors to care for us, not try to 'fix' us," said Kimberly Zieselman, an intersex woman and the executive director of interACT Advocates for Intersex Youth. "We're not anti-doctor or anti-surgery, we're just pro-consent and pro-honesty, especially for children who are too young to speak or to comprehend what's going on around them."

Human Rights Watch and interACT released the report on the 21st Intersex Awareness Day, which commemorates the first public protest against medically unnecessary surgery, at the 1996 American Academy of Pediatrics conference in Boston.

As many as 1.7 percent of babies are different from what is typically called a boy or a girl. The chromosomes, gonads, or internal, or external sex organs of these children differ from social expectations. Some intersex traits — such as atypical external genitalia — are apparent at birth. Others — such as gonads or chromosomes that do not match the expectations of the assigned sex — may manifest later in life, in some cases around puberty. Any of these children can be raised as either sex without surgery. On the other hand, genital or gonadal surgeries on intersex children too young to declare their gender identity carry the risk of surgically assigning the wrong sex.

Surgery to remove gonads can result in sterilization, and then require lifelong hormone replacement therapy. Operations to alter the size or appearance of children's genitals risk incontinence, scarring, lack of sensation, and psychological trauma. The procedures are irreversible, nerves that are severed cannot regrow, and scar tissue can limit options for future surgery. While certain surgical interventions on intersex children are undisputedly medically necessary, some surgeons in the US perform risky and medically unnecessary cosmetic surgery on intersex children, often before they are even able to talk.

Medical protocols have evolved. It is increasingly common for multi-disciplinary teams to treat intersex patients, often called cases of "Differences of Sex Development" ( DSD. ) This is a marked improvement over families meeting solely with a surgeon. Most medical practitioners now acknowledge that parents may prefer to leave their child's body intact. And while there are no centralized standards of care for intersex children, expert practitioners Human Rights Watch interviewed highlighted the need for change.

"Many children have differences," one pediatric surgeon told Human Rights Watch. "We deal with kids with all kinds of vascular anomalies and port wine stains, and we encourage those children to be out there, we encourage those children to be in school — and they are, and they do great…you can have a difference. We don't need to necessarily create normalization to make you safe and well-adjusted."

Guidelines have begun to emerge. In 2016, the American Medical Association ( AMA ) Board of Trustees issued a report recognizing that "DSD communities and a growing number of health care professionals have condemned…genital 'normalizing,' arguing that except in the rare cases in which DSD presents as life-threatening anomalies, genital modification should be postponed until the patient can meaningfully participate in decision making." The board recommended adoption of a resolution that, "except when life-threatening circumstances require emergency intervention, [doctors should] defer medical or surgical intervention until the child is able to participate in decision making."

In a 2017 letter to the AMA, the largest US support group for intersex people and parents of intersex children, called the AIS-DSD group, wrote: "We hope that the AIS-DSD Support Group will be able to shift the focus of our support efforts over time away from helping adults, youth and their families recover from medically-induced traumas, and toward support of the physical and psychological health of our members, from birth to old age."

In July 2017, three former US surgeons-general wrote that they believed "there is insufficient evidence that growing up with atypical genitalia leads to psychosocial distress," and "while there is little evidence that cosmetic infant genitoplasty is necessary to reduce psychological damage, evidence does show that the surgery itself can cause severe and irreversible physical harm and emotional distress."

In a statement marking 2017 Intersex Awareness Day, Physicians for Human Rights said: "Carrying out an irreversible and medically unnecessary surgery before a child is old enough to meaningfully consent violates informed consent requirements, and violates the obligation to do no harm," and called for an end to medically unnecessary surgery until a child is old enough to participate meaningfully in such decisions.

"Medical professional bodies should demonstrate the leadership doctors look to them for," said Kyle Knight, Human Rights Watch researcher and author of the report. "The American Medical Association, the American Academy of Pediatrics, and other specialist bodies should draw a hard line and say that except in cases of medical necessity, surgery on intersex children should be delayed until they can participate in the decision themselves."

"A Changing Paradigm: US Medical Provider Discomfort with Intersex Care Practices" is available at:

www.hrw.org/node/310340/ .

For more information, please contact:

In New York, for Human Rights Watch, Kyle Knight ( English ): +1-212-216-1290 ( office ); or +1-917-794-6690 ( mobile ); or knightk@hrw.org . Twitter: @knightktm

In New York, for Human Rights Watch, Graeme Reid ( English ): +1-212-216-1288 ( office ); or +1-203-606-5847 ( mobile ); or reidg@hrw.org . Twitter: @Graemecreid

In New York, for interACT, Cindi Creager, ( English ): 646-279-4559; or cindi@creagercole.com .


facebook twitter google +1 reddit email





Windy City Media Group does not approve or necessarily agree with the views posted below.
Please do not post letters to the editor here. Please also be civil in your dialogue.
If you need to be mean, just know that the longer you stay on this page, the more you help us.


  ARTICLES YOU MIGHT LIKE

Gay News

No word yet on Chicago Pride Parade, "global" online celebration planned 2020-04-03 - As city officials and others craft an effective response to the coronavirus pandemic, decisions about various LGBT Pride events in June still loom. ...


Gay News

Lakeview Pantry, local groups address COVID-19 restaurant layoffs, hunger 2020-04-03 - CHICAGO — April 3, 2020 — Lakeview Pantry, Chicago's largest food pantry, has partnered with the Lavin Family Foundation and Cubs Charities to ...


Gay News

FDA loosens restrictions on gay men who donate blood 2020-04-02 - On April 2, The Food and Drug Administration ( FDA ) said it would loosen some of the restrictions that have blocked gay ...


Gay News

'All in Illinois' launched to reinforce message to stay home 2020-04-02 - Gov. JB Pritzker launched a new statewide effort April 2 called "All in Illinois" to reinforce the state's core message, backed by scientists ...


Gay News

Democratic National Convention now in August 2020-04-02 - In a letter to the media, The Democratic National Convention (DNC) media logistics team announced that the 2020 event will be held the ...


Gay News

About Face Theatre's Wonka Ball and Laced production postponed 2020-04-01 - CHICAGO ( April 1, 2020 )— About Face Theatre today announced the postponement of its annual benefit gala and its planned production of ...


Gay News

International Prides coming together for June 27 event amid COVID-19 cancellations 2020-04-01 - Pride organizations around the world have come together to organize a "Global Pride" event on Saturday, June 27, in response to the hundreds ...


Gay News

Advocates: LGBTQs face additional complications in pandemic 2020-04-01 - Members of the LGBT community face additional healthcare challenges as they contend with the 2020 coronavirus pandemic, according to national LGBTQ-health advocates and ...


Gay News

Gay sign-language interpreter on press conferences, LGBTQs 2020-04-01 - As a child, Michael Spencer Albert never knew how important his hands would be one day as an interpreter for the deaf community. ...


Gay News

ELECTIONS 2020 Jill Rose Quinn heads toward being state's first openly transgender judge 2020-04-01 - Among those notching victories on March 14, during Illinois' primary, was Democratic judicial candidate Jill Rose Quinn. Her win was significant in ...


 



Copyright © 2020 Windy City Media Group. All rights reserved.
Reprint by permission only. PDFs for back issues are downloadable from
our online archives. Single copies of back issues in print form are
available for $4 per issue, older than one month for $6 if available,
by check to the mailing address listed below.

Return postage must accompany all manuscripts, drawings, and
photographs submitted if they are to be returned, and no
responsibility may be assumed for unsolicited materials.
All rights to letters, art and photos sent to Nightspots
(Chicago GLBT Nightlife News) and Windy City Times (a Chicago
Gay and Lesbian News and Feature Publication) will be treated
as unconditionally assigned for publication purposes and as such,
subject to editing and comment. The opinions expressed by the
columnists, cartoonists, letter writers, and commentators are
their own and do not necessarily reflect the position of Nightspots
(Chicago GLBT Nightlife News) and Windy City Times (a Chicago Gay,
Lesbian, Bisexual and Transegender News and Feature Publication).

The appearance of a name, image or photo of a person or group in
Nightspots (Chicago GLBT Nightlife News) and Windy City Times
(a Chicago Gay, Lesbian, Bisexual and Transgender News and Feature
Publication) does not indicate the sexual orientation of such
individuals or groups. While we encourage readers to support the
advertisers who make this newspaper possible, Nightspots (Chicago
GLBT Nightlife News) and Windy City Times (a Chicago Gay, Lesbian
News and Feature Publication) cannot accept responsibility for
any advertising claims or promotions.

 

 

 

TRENDINGBREAKINGPHOTOS

Sponsor
Sponsor


 



About WCMG Publications News  Entertainment Features Donate Bars & Clubs Calendar Advertisers OUT! Guide    Marriage


About WCMG      Contact Us      Online Front  Page      Windy City  Times      Nightspots      OUT! Guide     
Identity      BLACKlines      En La Vida      Archives      Subscriptions      Distribution      Windy City Queercast     
Queercast Archives      Advertising  Rates      Deadlines      Advanced Search     
Press  Releases      Event Photos      Join WCMG  Email List      Email Blast     
Upcoming Events      Todays Events      Ongoing Events      Post an Event      Bar Guide      Community Groups      In Memoriam      Outguide Categories      Outguide Advertisers      Search Outguide      Travel      Dining Out      Blogs      Spotlight  Video     
Classifieds      Real Estate      Place a  Classified     

Windy City Media Group publishes Windy City Times,
The Bi-Weekly Voice of the Gay, Lesbian, Bisexual and Trans Community.
5315 N. Clark St. #192, Chicago, IL 60640-2113 • PH (773) 871-7610 • FAX (773) 871-7609.